How We Can Support You

- Comprehensive neurological evaluations - Imaging tests and scans with high-performance equipment:

- Multidisciplinary team approach
- Integrated care plans that also include family support

- Personalized Medical Interventions
- Monitoring Progress and Adjusting Treatment
- Follow-up for Chronic Conditions

- Educational programs on managing neurological diseases in children
- Connecting with support groups and other community resources
- Counseling for patients and their families
- Guidance towards assistance and support programs

The Caregiver's Guide

Thank you for trusting our team. We are here to provide the best possible care for your child. If you have any additional questions or need support, please feel free to contact us. Below, you will find some useful information:

Upon admission

Useful Information for Hospital Admission:

A. What documents do You Need for each visit?

  • Referral letter from the family doctor or specialist for pediatric neurology
  • Identification document of the legal guardian accompanying the child / notarized authorization if the child is not accompanied by the legal guardian
  • The child’s medical records (preferably arranged in chronological order starting with the latest)
  • Previous medical investigations, including imaging examinations (CT, MRI, etc.) on CD or electronic format
  • The mother's pregnancy medical records
  • Video recordings/photos of the child's condition (if applicable – e.g., seizures, involuntary movements, walking disorders, etc.)

B. What Should You Bring for Hospital Admission?

  • Comfortable clothing
  • Hygiene products
  • Favorite toys, books, tablet, phone, etc.

Please note that only essential items can be stored in the hospital room, while the main luggage will be kept in the hospital’s storage area.

C. How Does the Admission Procedure Work?

For Scheduled Patients:

  • Pre-admission confirmation:
    Before admission, you will receive a short text message on your mobile phone with a reminder for the appointment date and time.
    You will be asked to confirm the appointment and sign the GDPR agreement via the provided SMS link. This step is mandatory to confirm your appointment.
  • Hospital check-in:
    Arrive at the hospital reception at the scheduled date and time with the required documents.
    The admission procedures will be completed, followed by a clinical examination of the child.
  • Admission and preparation:
    After the admission process, a hospital assistant will accompany you to the 4th floor, where both the child and the accompanying adult will undergo hygiene procedures before entering the department.

 Important Notice: If your child develops an acute illness before admission, please inform us in advance to avoid an unnecessary visit and to reschedule the appointment.
If the child shows signs of an acute/febrile/contagious illness, admission to the neurology department will be postponed, as it is a chronic care unit that includes immunocompromised patients.
If the accompanying adult is ill, another guardian (another parent or a different caregiver) must accompany the child instead.

For Unscheduled Emergencies:

  • Proceed to the triage area.
    You will be assessed in the emergency room, where the next steps for evaluation and treatment will be determined.

A. Description of Facilities and Amenities

  • Accommodation is provided in the department’s rooms based on the child's age, gender, and medical condition, subject to availability.
  • Rooms are equipped with private bathrooms and contain 3 to 4 beds. Additionally, a shared bathroom with a bathtub is available if needed.
  • Meals are served at the patient's bedside, with bedside tables featuring foldable trays. The meal schedule is as follows:
    - Breakfast: 08:30 - 09:30
    - Lunch: 13:30 - 14:30
    - Dinner: 18:30 - 19:30

You may store food in the refrigerators located in the dining rooms. A drinking water dispenser is available.
The department has a library and a dining room where, in the evenings (when possible), children and parents can participate in movie nights featuring animated films.

B. Visiting Hours and Ward Rules:

  • Visiting is currently not allowed due to epidemiological reasons.
  • Leaving the ward without a valid medical reason during hospitalization is not permitted. Please be aware that this is a pediatric hospital treating various infectious diseases.
  • Smoking is strictly prohibited within the hospital premises (as per legal regulations).
  • Filming and photography inside the hospital are not allowed.
  • Electronic devices can be used with consideration for other patients and parents, while respecting rest periods.
  • Mobile phones are not allowed in the video-EEG laboratories.

For further details, please refer to the hospital regulations provided in your room.

C. Information About Treatments and Procedures

  • Your doctor will determine a diagnostic and treatment plan after the medical evaluation, which may involve multiple medical procedures and consultations.
  • Before each procedure, the medical team will discuss it with you and explain all necessary steps. It will only be performed with your informed consent.
  • Since this is a university hospital, resident doctors will also participate in daily rounds and procedures with your approval.
  • We encourage you to ask any questions you may have about the upcoming procedures.

Preparation Tips for Common Procedures:

  • Laboratory tests – Typically, blood samples are collected on an empty stomach after your medical team has determined the required tests. A topical anesthetic gel will be applied by the nurse beforehand to minimize discomfort. Samples are usually taken in the treatment room early in the morning or, in emergencies, at the patient’s bedside.
  • We often use Accuvein, a portable, non-contact vein illumination device, to facilitate blood draws.
  • Video EEG – This is a painless procedure performed in the EEG laboratories within the department or in the day-hospital area.
    The child should have freshly washed hair without conditioner, gel, hairspray, or other cosmetic products.
    Depending on the case, your doctor may recommend additional preparations, such as sleep deprivation before the test.

Before any procedure, the medical staff will gently explain it to the child in an age-appropriate way, using visual aids if necessary to enhance comfort and understanding.

D. Communication and Family Involvement

  • During hospitalization, we encourage open communication between doctors and families. Please do not hesitate to report any concerns or ask questions.
  • We welcome active parental involvement in your child’s care. Let us know about any personal preferences or routines (e.g., “My child sleeps later and needs to receive treatment at a later time”).

A. Discharge Plan and Follow-Up After Hospitalization

  • You will be informed in due time about the discharge date by the attending physician.
  • At discharge, you will receive the following medical documents, for which you will confirm receipt by signing your child's medical observation sheet:
      • Hospital Discharge Summary - Contains all medical information related to the hospitalization, as well as home care recommendations, including hygiene and dietary regimen, prescribed treatment, additional necessary investigations, follow-up appointment dates, etc.
      • Medical Letter –Includes the same information as the discharge summary. Attention! A copy must be sent to your family doctor, as it contains essential details for continuing prescriptions and monitoring any necessary conditions at home.
      • Performed Investigations
  • Note: CDs with imaging investigations can be requested from the radiology department at an additional cost by filling out a request form available at the hospital reception.

    • Emergency Instructions Based on Pathology

B. Emergency Contact and Information

  • If you are near the hospital, go directly to the emergency room.
  • If you are not close to the hospital, go to the nearest hospital/emergency center.
    Important: Do not embark on a long journey by car with a child in an emergency situation, as there is a risk of deterioration. Please call 112 to ensure your child’s safety.
  • Hospital Contact: +40 314 136 700

About Rare Diseases

Rare neurological diseases are uncommon conditions that affect the nervous system (brain, spinal cord, nerves). They can be caused by genetic issues or abnormalities present from birth and may have serious effects on patients' daily lives.
We treat a variety of such conditions, and among the most frequently encountered are:

Association for the Support of People with Spinal Muscular Atrophy

Books